TY - GEN

T1 - Good Days, Bad Days

T2 - 2024 CHI Conference on Human Factors in Computing Sytems, CHI 2024

AU - Paymal, Lea

AU - Homewood, Sarah

N1 - Publisher Copyright: © 2024 Copyright held by the owner/author(s)

PY - 2024

Y1 - 2024

N2 - People with chronic illness often fluctuate between “good days” and “bad days” where symptoms are more or less severe depending on a range of factors and triggers. Our research contributes preliminary empirical knowledge on technology use during chronic illness depending on fluctuations in symptoms over time. We conducted a scoping study with people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to understand how their illness shapes how they use technologies in their everyday lives. This research contributes a timely HCI lens on the under-researched illness of ME/CFS, proposes the “trajectories of technology use” model that can be used to articulate how technologies are used during chronic illness, and points to design openings for technologies that are more accessible for people who experience chronic fatigue, sensory sensitivities and cognitive limitations. These design openings include non-screen-based technologies, and designing technologies that acknowledge and adapt to the changing body during fluctuations in symptoms.

AB - People with chronic illness often fluctuate between “good days” and “bad days” where symptoms are more or less severe depending on a range of factors and triggers. Our research contributes preliminary empirical knowledge on technology use during chronic illness depending on fluctuations in symptoms over time. We conducted a scoping study with people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to understand how their illness shapes how they use technologies in their everyday lives. This research contributes a timely HCI lens on the under-researched illness of ME/CFS, proposes the “trajectories of technology use” model that can be used to articulate how technologies are used during chronic illness, and points to design openings for technologies that are more accessible for people who experience chronic fatigue, sensory sensitivities and cognitive limitations. These design openings include non-screen-based technologies, and designing technologies that acknowledge and adapt to the changing body during fluctuations in symptoms.

KW - Accessibility

KW - Body in HCI

KW - Chronic fatigue

KW - Chronic Fatigue Syndrome

KW - Design

KW - Dynamic Disability

KW - Episodic Illness

KW - ME/CFS

KW - Myalgic Encephalomyelitis

U2 - 10.1145/3613904.3642553

DO - 10.1145/3613904.3642553

M3 - Article in proceedings

AN - SCOPUS:85194900815

BT - CHI 2024 - Proceedings of the 2024 CHI Conference on Human Factors in Computing Sytems

PB - Association for Computing Machinery, Inc.

Y2 - 11 May 2024 through 16 May 2024

ER -