Good Days, Bad Days: Understanding the Trajectories of Technology Use During Chronic Fatigue Syndrome
Publikation: Bidrag til bog/antologi/rapport › Konferencebidrag i proceedings › Forskning › fagfællebedømt
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People with chronic illness often fluctuate between “good days” and “bad days” where symptoms are more or less severe depending on a range of factors and triggers. Our research contributes preliminary empirical knowledge on technology use during chronic illness depending on fluctuations in symptoms over time. We conducted a scoping study with people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) to understand how their illness shapes how they use technologies in their everyday lives. This research contributes a timely HCI lens on the under-researched illness of ME/CFS, proposes the “trajectories of technology use” model that can be used to articulate how technologies are used during chronic illness, and points to design openings for technologies that are more accessible for people who experience chronic fatigue, sensory sensitivities and cognitive limitations. These design openings include non-screen-based technologies, and designing technologies that acknowledge and adapt to the changing body during fluctuations in symptoms.
Originalsprog | Engelsk |
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Titel | CHI 2024 - Proceedings of the 2024 CHI Conference on Human Factors in Computing Sytems |
Antal sider | 10 |
Forlag | Association for Computing Machinery, Inc. |
Publikationsdato | 2024 |
Artikelnummer | 128 |
ISBN (Elektronisk) | 9798400703300 |
DOI | |
Status | Udgivet - 2024 |
Begivenhed | 2024 CHI Conference on Human Factors in Computing Sytems, CHI 2024 - Hybrid, Honolulu, USA Varighed: 11 maj 2024 → 16 maj 2024 |
Konference
Konference | 2024 CHI Conference on Human Factors in Computing Sytems, CHI 2024 |
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Land | USA |
By | Hybrid, Honolulu |
Periode | 11/05/2024 → 16/05/2024 |
Sponsor | ACM SIGCHI |
Bibliografisk note
Funding Information:
This work was partially supported by Erasmus+, and Paris-Saclay University IDEX international internship excellence grant. We thank our participants, reviewers and colleagues, particularly Valeria Borsotti for her time and care helping develop this paper.
Publisher Copyright:
© 2024 Copyright held by the owner/author(s)
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