The agency of patients and carers in medical care and self-care technologies for interacting with doctors

Research output: Contribution to journal › Journal article › Research › peer-review

Standard

The agency of patients and carers in medical care and self-care technologies for interacting with doctors. / Nunes, Francisco; Andersen, Tariq; Fitzpatrick, Geraldine.

In: Health Informatics Journal, Vol. 25, No. 2, 06.2019, p. 330-349.

Research output: Contribution to journal › Journal article › Research › peer-review

Harvard

Nunes, F, Andersen, T & Fitzpatrick, G 2019, 'The agency of patients and carers in medical care and self-care technologies for interacting with doctors', Health Informatics Journal, vol. 25, no. 2, pp. 330-349. https://doi.org/10.1177/1460458217712054

APA

Nunes, F., Andersen, T., & Fitzpatrick, G. (2019). The agency of patients and carers in medical care and self-care technologies for interacting with doctors. Health Informatics Journal, 25(2), 330-349. https://doi.org/10.1177/1460458217712054

Vancouver

Nunes F, Andersen T, Fitzpatrick G. The agency of patients and carers in medical care and self-care technologies for interacting with doctors. Health Informatics Journal. 2019 Jun;25(2):330-349. https://doi.org/10.1177/1460458217712054

Author

Nunes, Francisco ; Andersen, Tariq ; Fitzpatrick, Geraldine. / The agency of patients and carers in medical care and self-care technologies for interacting with doctors. In: Health Informatics Journal. 2019 ; Vol. 25, No. 2. pp. 330-349.

Bibtex

@article{c7ff8ec923df45dd88a858aacac8aea7,
title = "The agency of patients and carers in medical care and self-care technologies for interacting with doctors",
abstract = "People living with Parkinson{\textquoteright}s disease engage in self-care for most of the time but, two or three times a year, they meet with doctors to re-evaluate the condition and adjust treatment. Patients and (informal) carers participate actively in these encounters, but their engagement might change as new patient-centred technologies are integrated into healthcare infrastructures. Drawing on a qualitative study that used observations and interviews to investigate consultations, and digital ethnography to understand interactions in an online community, we describe how patients and carers living with Parkinson{\textquoteright}s participate in the diagnosis and treatment decisions, engage in discussions to learn about certain topics, and address inappropriate medication. We contrast their engagement with a review of self-care technologies that support interactions with doctors, to investigate how these artefacts may influence the agency of patients and carers. Finally, we discuss design ideas for improving the participation of patients and carers in technology-mediated scenarios.",
keywords = "collaborations, patient-doctor interaction, self-care, self-care technologies",
author = "Francisco Nunes and Tariq Andersen and Geraldine Fitzpatrick",
year = "2019",
month = jun,
doi = "10.1177/1460458217712054",
language = "English",
volume = "25",
pages = "330--349",
journal = "Health Informatics Journal",
issn = "1460-4582",
publisher = "SAGE Publications",
number = "2",

}

RIS

TY - JOUR

T1 - The agency of patients and carers in medical care and self-care technologies for interacting with doctors

AU - Nunes, Francisco

AU - Andersen, Tariq

AU - Fitzpatrick, Geraldine

PY - 2019/6

Y1 - 2019/6

N2 - People living with Parkinson’s disease engage in self-care for most of the time but, two or three times a year, they meet with doctors to re-evaluate the condition and adjust treatment. Patients and (informal) carers participate actively in these encounters, but their engagement might change as new patient-centred technologies are integrated into healthcare infrastructures. Drawing on a qualitative study that used observations and interviews to investigate consultations, and digital ethnography to understand interactions in an online community, we describe how patients and carers living with Parkinson’s participate in the diagnosis and treatment decisions, engage in discussions to learn about certain topics, and address inappropriate medication. We contrast their engagement with a review of self-care technologies that support interactions with doctors, to investigate how these artefacts may influence the agency of patients and carers. Finally, we discuss design ideas for improving the participation of patients and carers in technology-mediated scenarios.

AB - People living with Parkinson’s disease engage in self-care for most of the time but, two or three times a year, they meet with doctors to re-evaluate the condition and adjust treatment. Patients and (informal) carers participate actively in these encounters, but their engagement might change as new patient-centred technologies are integrated into healthcare infrastructures. Drawing on a qualitative study that used observations and interviews to investigate consultations, and digital ethnography to understand interactions in an online community, we describe how patients and carers living with Parkinson’s participate in the diagnosis and treatment decisions, engage in discussions to learn about certain topics, and address inappropriate medication. We contrast their engagement with a review of self-care technologies that support interactions with doctors, to investigate how these artefacts may influence the agency of patients and carers. Finally, we discuss design ideas for improving the participation of patients and carers in technology-mediated scenarios.

KW - collaborations

KW - patient-doctor interaction

KW - self-care

KW - self-care technologies

U2 - 10.1177/1460458217712054

DO - 10.1177/1460458217712054

M3 - Journal article

C2 - 28653552

VL - 25

SP - 330

EP - 349

JO - Health Informatics Journal

JF - Health Informatics Journal

SN - 1460-4582

IS - 2

ER -

ID: 243006186